LINKS

 

Planning to Have Surgery?

By Barbara Bronson Gray, RN, MN from her blog “BodBoss.”
This is an excellent check-list type article about preparing for, and following up after, surgery. There are a myriad of things we as patients can forget, so it helps to have some reminders.

Advice to “Newly Diagnosed” Caregivers

By Lynn Greenblatt of Caregiving Cafe – “Whether sudden illness throws you into a new caregiving role or it evolves gradually over time, there are certain steps that can help a new family caregiver to better manage care…”

Scrub Up! Prevent 99,000 deaths from healthcare associated infections

By Martine Ehrenclou – “It’s difficult to ask your doctor or other medical provider if he/she has washed up. Some physicians see it as a direct challenge and take offense, while others are receptive to respectful prompting.”

Now’s the Time to Write Down Your Personal Healthcare Checklist

By Barbara Bronson Gray, RN, MN and Alexandra Yperifanos “Think of a time when you’ve felt very sick, maybe a case of pneumonia, a bad bout of the flu, or a more serious illness…How do you protect yourself when your energy reserve is at zero due to illness? One solution is to create a personal healthcare checklist – and share it with the most important people in your life.”

iPhone App to Organize Your Medical History

By Robyn Gross Stoller
We couldn’t have said it better ourselves. Thank you Robyn Gross Stoller for sharing ExpressWell with your audience.

How to Quickly Explain Your Health History

By Barbara Bronson Gray, RN, MN “Have you ever felt tongue-tied explaining your health situation when the health provider walks in the examining room? Hard to put your life history into what entrepreneurs call an ‘elevator speech’?”

Letting Patients Read the Doctor’s Notes

By Pauline W. Chen, M.D. “…“It’s as we say: Nothing about me without me…” Getting hold of your medical records is not always easy but making every effort to do it and to do it regularly will inevitably be of great help to you and your family. Once you’ve compiled your historical medical data, then, after each medical visit, make sure to ask for copies. You should be the one with the most complete file of your medical history. With facts in hand, you can best advocate for your needs and those of your loved ones. This is an excellent article from The New York Times Health Section speaking exactly to this point.

The Take-Charge Patient: How You Can Get The Best Medical Care

A book by Martine Ehrenclou. An excellent resource for patients!

A Must-Have! The Patient’s Checklist

A book by Elizabeth Bailey. It’s a must-have book that can save your life with its simple and insightful approach.

The Own Our Own Health Campaign

We love what they’re doing and what they are trying to achieve! Watch this public service message meant to help put patients in the driver’s seat. Brought to you by the @s4pm community, a collaboration between members of the Society for Participatory Medicine (participatorymedicine.org).

The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss

A book by Nancy L. Mace and Peter V. Rabins. “Without question this book was the most valuable resource I was given when taking care of my father at the end of his life. A ‘must-read’ for anyone attempting to care for loved ones with memory loss, dementia or Alzheimer’s disease.” — Alexandra Yperifanos, Founder, ExpressWell, Inc.

Health Insurance: Navigating Traps & Gaps

A book by Maura Carley, MPH, CIC. “…healthcare coverage has become entirely too complex and expensive. Understanding the issues is more important than ever. Lack of good health coverage protection can be financially and emotionally devastating. This book will help you avoid costly traps and gaps.”

Asking Our Doctor Questions – Many of Us Don’t Have Much to Say

By Stephen Wilkins, MPH. “Since the first of such studies going back to the late 1970s, researchers have found that, except for patients who are highly involved in their own health care, most people ask their doctor few if any important health questions.”

Talks | TEDxMaastricht – Bas Bloem – “From God to Guide”

“Participatory health for all of us!” is the crux of this thought-provoking talk by Professor Bas Bloem. He includes his patient to illustrate how the distance between patient and doctor is bridged, and in this instance, abandoned when the patient petitions: “I want good and reliable information! I want to have part in making the decisions to start treatment or not! And, where can I find other patients like me? And what can I do to make things better?” Bloem then describes how the doctor may become a guide in the life of his patients…

Consider This: What Happens When We Go from Being Customers to Being Patients?

By Alexandra Yperifanos. The adage says “the customer is always right”. But what if the customer is a patient? There seems to be a lot in the news lately about patients being afraid to speak openly to their doctors.

Are You Afraid of Being Labeled a Difficult Patient?

By Barbara Bronson Gray, RN, MN “…The fear of being labeled “difficult” affects many of us, even we who consider ourselves self-confident and capable in other arenas of our life outside of health care. We’re a nation of pleasers when it comes to health care. Unfortunately, wanting to please your healthcare providers and their staff can negatively affect the quality of your health care…”

How to Avoid Medical Errors: 8 Key Tips

By Barbara Bronson Gray, RN, MN. “Whenever you have an interaction with the healthcare system you are at risk of being affected by a medical error.”

Scylla and Charybdis: The Doctor’s Dilemma and How Patients Can Help

By Alexandra Yperifanos. I wonder how often a patient says “It’s OK that the doctor rushed me, I’m one of 80 people he has to see today. Besides, he has hours of follow-up paperwork on top of that. He’s very busy.” Probably not very often. It’s in our nature to want “good service” and want to be heard.

Preventing Medical Errors in Electronic Health Records

By Alexandra Yperifanos. Electronic health records are a brilliant idea, in theory. The reality, however, is that the information they contain is at great risk of human error.

Talks | TEDMED – Charity Tillemann-Dick: Singing After a Double Lung Transplant

“You’ll never sing again, said her doctor. But in a story from the very edge of medical possibility, operatic soprano Charity Tillemann-Dick tells a double story of survival — of her body, from a double lung transplant, and of her spirit, fueled by an unwavering will to sing.”

What is the Difference between a Personal Health Record, an Electronic Health Record, and an Electronic Medical Record?

It can be confusing to say the least. HealthIT.gov breaks it down nicely on their ‘Patients and Families’ portal along with providing other useful information.

How to De-Frag Your Health Care

By Barbara Bronson Gray, RN, MN. “If your computer has ever slowed way down you may have been advised to “defrag,” which puts all parts of a file together in the same place on the drive, enabling it to run faster and more efficiently. In much the same way, your health care needs to be de-fragged. For most people, health care is extremely fragmented, creating errors, delaying diagnoses and treatment and increasing costs.”

The Butter is Spread Too Thin: A Day in the Life of a Nurse

Hospital nurses are faced with many challenges when caring for patients. Constant interruptions are only one of the unavoidable realities in a day in the life of a nurse. ‘Interruption Awareness: A Nursing Minute for Patient Safety!’ is a video produced by Beth Boynton, MS, RN which illustrates the challenges nurses must overcome to do their work while being continuously interrupted.

Never Give Up On Your Health – Sniffing out a Discovery

By Katie Little. “…During the last 5 years, I have gone to three different doctors for opinions regarding my problem, with all three indicating that nothing was wrong and that I should learn to live with this difficulty…”

Talks | TEDWomen – Caroline Casey: Looking Past Limits

“Activist Caroline Casey tells the story of her extraordinary life, starting with a revelation (no spoilers). In a talk that challenges perceptions, Casey asks us all to move beyond the limits we may think we have. First, Caroline Casey put Ireland on the accessibility map. Now she’s changing the global social landscape for people with disabilities.”

Could I Be a Better Patient?

By Jennifer Huget. “You think you’ve got this being-a-patient thing down pat: You put on your paper gown (opening in the back), flip through a dog-eared People magazine, have your blood pressure taken, see the doctor for five minutes, answer his or her questions, pay your co-pay and get back to work. But is there anything you can do to get more out of that doctor visit?”

Talks | TEDx – Lucien Engelen: Crowdsource Your Health

“You can use your smartphone to find a local ATM, but what if you need a defibrillator? At TEDxMaastricht, Lucien Engelen shows us online innovations that are changing the way we save lives, including a crowdsourced map of local defibrillators.”

Talks | TEDx – Dave deBronkart: Meet e-Patient Dave

“When Dave deBronkart learned he had a rare and terminal cancer, he turned to a group of fellow patients online — and found the medical treatment that saved his life. Now he calls on all patients to talk with one another, know their own health data, and make health care better one e-Patient at a time.”

A Safety Checklist for Patients

By Dr. Peter Pronovost. “Far too many patients are harmed rather than helped from their interactions with the health care system. While reducing this harm has proven to be devilishly difficult, we have found that checklists help. Checklists help to reduce ambiguity about what to do, to prioritize what is most important, and to clarify the behaviors that are most helpful.”

The Doctor-Patient Relationship Can Be Difficult

By Dr. Jordan Grumet. “…The doctor-patient relationship can be difficult. At it’s best, it is a mutual, symbiotic connection between client and consultant. Sometimes, however, being a physician is like trying to parent two thousand teenagers. Although there is great affection on both sides of the examining table, the perspective is markedly different.”

Your Health Depends on Good Communication

“Asking questions and providing information to your doctor and other care providers can improve your care. Talking with your doctor builds trust and leads to better results, quality, safety, and satisfaction. Quality health care is a team effort. You play an important role.”
– Agency for Health Research & Quality (AHRQ)