RESOURCES

 

Advice to “Newly Diagnosed” Caregivers

By Lynn Greenblatt of Caregiving Cafe – “Whether sudden illness throws you into a new caregiving role or it evolves gradually over time, there are certain steps that can help a new family caregiver to better manage care…”

Now’s the Time to Write Down Your Personal Healthcare Checklist

By Barbara Bronson Gray, RN, MN and Alexandra Yperifanos “Think of a time when you’ve felt very sick, maybe a case of pneumonia, a bad bout of the flu, or a more serious illness…How do you protect yourself when your energy reserve is at zero due to illness? One solution is to create a personal healthcare checklist – and share it with the most important people in your life.”

iPhone App to Organize Your Medical History

By Robyn Gross Stoller
We couldn’t have said it better ourselves. Thank you Robyn Gross Stoller for sharing ExpressWell with your audience.

How to Quickly Explain Your Health History

By Barbara Bronson Gray, RN, MN “Have you ever felt tongue-tied explaining your health situation when the health provider walks in the examining room? Hard to put your life history into what entrepreneurs call an ‘elevator speech’?”

The Take-Charge Patient: How You Can Get The Best Medical Care

A book by Martine Ehrenclou. An excellent resource for patients!

A Must-Have! The Patient’s Checklist

A book by Elizabeth Bailey. It’s a must-have book that can save your life with its simple and insightful approach.

The Own Our Own Health Campaign

We love what they’re doing and what they are trying to achieve! Watch this public service message meant to help put patients in the driver’s seat. Brought to you by the @s4pm community, a collaboration between members of the Society for Participatory Medicine (participatorymedicine.org).

The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss

A book by Nancy L. Mace and Peter V. Rabins. “Without question this book was the most valuable resource I was given when taking care of my father at the end of his life. A ‘must-read’ for anyone attempting to care for loved ones with memory loss, dementia or Alzheimer’s disease.” — Alexandra Yperifanos, Founder, ExpressWell, Inc.

Health Insurance: Navigating Traps & Gaps

A book by Maura Carley, MPH, CIC. “…healthcare coverage has become entirely too complex and expensive. Understanding the issues is more important than ever. Lack of good health coverage protection can be financially and emotionally devastating. This book will help you avoid costly traps and gaps.”

What is the Difference between a Personal Health Record, an Electronic Health Record, and an Electronic Medical Record?

It can be confusing to say the least. HealthIT.gov breaks it down nicely on their ‘Patients and Families’ portal along with providing other useful information.

A Safety Checklist for Patients

By Dr. Peter Pronovost. “Far too many patients are harmed rather than helped from their interactions with the health care system. While reducing this harm has proven to be devilishly difficult, we have found that checklists help. Checklists help to reduce ambiguity about what to do, to prioritize what is most important, and to clarify the behaviors that are most helpful.”

Your Health Depends on Good Communication

“Asking questions and providing information to your doctor and other care providers can improve your care. Talking with your doctor builds trust and leads to better results, quality, safety, and satisfaction. Quality health care is a team effort. You play an important role.”
– Agency for Health Research & Quality (AHRQ)